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Planning for the future

If you have younger onset dementia, it's essential to acknowledge that one day you may not be able to make informed decisions on your own. That’s why it’s critical to plan ahead as much as possible – especially when it comes to financial, medical and personal needs.

Watch the following video: ‘Planning for the future’ to learn more about how to plan ahead if you have dementia or read the video transcript.

Getting prepared early

In the early stages of your diagnosis, it’s a good idea to talk to your family and healthcare professionals about what you may wish for in the future. While it may seem daunting, it’s useful to discuss things like writing or updating your will, nominating a substitute decision maker, and expressing any preferences for end of life care.

You may need to plan for:

  • Financial matters, such as your mortgage or insurance policies
  • Legal matters
  • Work arrangements
  • Medical care
  • Care arrangements.

Planning ahead with younger onset dementia

Planning ahead can ensure you have control over future decisions. After being diagnosed with younger onset dementia, you should plan ahead while you have the capacity to do so.

You will also need to check if there are any extra considerations or requirements due to your condition. For example, a self-written will could be open to challenge. Legal advice or medical verification can make this process easier. Find out more information about where you can get support to plan ahead.

For further information, support and counselling, visit the National Dementia Helpline page, or call on 1800 100 500 from 8.00am to 8.00pm weekdays. For language assistance, please contact the Translating and Interpreting Service on 131 450.